Author links open overlay panel, , , , , , , , AbstractObjectivesAlthough many countries lack Severe Acute Respiratory Infections (SARI) surveillance, establishing such systems is crucial for pandemic preparedness. Adjusting existing registries designed for other purposes may be viable. We investigated the potential of the Dutch National Intensive Care Evaluation (NICE) registry, originally designed to monitor intensive care unit (ICU) care quality, for near real-time SARI surveillance by determining data timeliness.
Study designA descriptive study was performed with retrospective ICU admissions (2012–2019).
MethodsThe lag time between SARI admissions and their data upload was determined. Incident SARI cases, SARI proportion relative to all medical admissions, and SARI patient mortality were examined at various lag times and compared to the complete data.
ResultsICUs uploaded data at varying intervals. The Spearman correlation coefficient between the complete and incomplete ICU incident cases increased the most between 2 and 6 weeks of lag time and increased further with longer lag time. Data uploaded within two weeks fluctuated, with no uploaded data in 13 % of the weeks.
ConclusionThe current uploading delays render the NICE registry unsuitable for near real-time SARI surveillance. Investing in timely and preferably automated data exchange mechanisms can enhance existing registry purposes. This may benefit other countries as well.
AbbreviationsAPACHEAcute Physiology and Chronic Health Evaluation
ECDCEuropean Centre of Disease Prevention and Control
ILIInfluenza-like-illness
NICENational Intensive Care Evaluation
NivelNetherlands Institute for Health Services Research
SARISevere Acute Respiratory Infections
WHOWorld Health Organization
PDMSPatient Data Management Systems
EHRElectronic Health Records
FHIRFast Healthcare Interoperability Resources
KeywordsRegistry
Surveillance
Pandemic preparedness
SARI
Intensive care
Influenza
Pneumonia
© 2025 The Authors. Published by Elsevier Inc.
Comments (0)