Objectives Risk prediction models are increasingly used at point of care to support personalized treatment decisions. This study created and evaluated two Information, Education, and Communication (IEC) resources to improve public understanding of a risk prediction tool for Chronic Obstructive Pulmonary Disease (COPD) management.
Methods We created a 5-minute video and a pamphlet explaining the burden of COPD and how a prediction model generates quantitative estimates of, and benefit of certain treatments for, exacerbations of the disease. These tools were tested among students and researchers in public health. A patient partner was engaged throughout to ensure the materials were accessible and patient-centered.
Results Twenty-five individuals participated (80% female; 60% aged 25–64). After reviewing the materials, 92% of participants agreed to the statement “I am familiar with the idea of precision medicine approach”. Most (72%) felt they received sufficient information about the tool, and 92% believed such materials could support patient decision. Participants stated that the materials were clear, detailed, and written in plain language. Participants preferred the pamphlet (68%) over the video (44%). Suggestions for improvement included expanding content on how the tool works.
Conclusions The findings of this study provided a better understanding of how to present complex medical information around precision medicine that is accessible and meaningful to diverse audiences. We will improve our materials based on these comments, and continue to make them available at https://resp.core.ubc.ca/show/patient_committee_2025
Competing Interest StatementThe authors have declared no competing interest.
Funding StatementThis study did not receive any funding
Author DeclarationsI confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.
Yes
The details of the IRB/oversight body that provided approval or exemption for the research described are given below:
Ethics committee/IRB of the University of British Columbia gave ethical approval for this work (H23-00445).
I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.
Yes
I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).
Yes
I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.
Yes
Data AvailabilityAll data produced in the present study are available upon reasonable request to the authors
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