Normally Huntington’s disease symptoms don’t develop until at least age 30, but in my cousin Charly it was in her early 20s, back in 2014. My mum and auntie have been amazing in their fundraising efforts for the University, so I thought: right – it’s my turn to get up and do something too.

I’m a personal trainer so am naturally active, but I hate running! So starting with a running challenge is actually a big deal for me. 

Included in my Hunting10 is also the Hyrox in Bologna, the Plymouth Half Marathon and the three peaks 24-hour challenge, before culminating in a sprint triathlon at Blenheim Palace. It’s going to be fun, but I know full well it won’t be easy. 

We’re a really close-knit family and I’m so pleased Charly will be there to cheer me on at Exmouth. I’ve just got to keep going and raising awareness of this condition, as you never know who it might affect.

Josh Fedrick