Patient experience measurement in mental health and substance dependence inpatient care: development of short versions of validated questionnaires through importance ranking and psychometric testing

Alwin, D.F., Krosnick, J.A.: The measurement of values in surveys: A comparison of ratings and rankings. Pub. Opin. Q. 49(4), 535–552 (1985). https://doi.org/10.1086/268949

Article  Google Scholar 

Baró, E., Carulla, J., Cassinello, J., Colomer, R., Mata, J.G., Gascón, P., Gasquet, J.A., Herdman, M., Rodríguez, C.A., Sánchez, J., Valentín, V.: Development of a new questionnaire to assess patient perceptions of Cancer-Related fatigue: item generation and item reduction. Value Health. 12(1), 130–138 (2009). https://doi.org/10.1111/j.1524-4733.2008.00426.x

Article  PubMed  Google Scholar 

Bjertnaes, Ø.A., Garratt, A., Johannessen, J.O.: Data collection methods and results in user surveys in mental health care. Tidsskrift Den Norske Laegeforening: Tidsskrift Praktisk Medicin Ny Raekke. 126(11), 1481–1483 (2006). http://europepmc.org/abstract/MED/16732343

Google Scholar 

Bjertnaes, O., Iversen, H.H., Kjollesdal, J.: PIPEQ-OS—An instrument for on-site measurements of the experiences of inpatients at psychiatric institutions. BMC Psychiatry. 15 (2015). https://doi.org/10.1186/s12888-015-0621-8

Bredski, J., Forsyth, K., Mountain, D., Harrison, M., Irvine, L., Maciver, D.: What in-patients want: A qualitative study of what’s important to mental health service users in their recovery (Wayfinder Partnership). Mental Health Rev. J. 20, 1–12 (2015). https://doi.org/10.1108/MHRJ-02-2014-0003

Article  Google Scholar 

Eldal, K., Natvik, E., Veseth, M., Davidson, L., Skjølberg, Å., Gytri, D., Moltu, C.: Being recognised as a whole person: A qualitative study of inpatient experience in mental health. Issues Ment Health Nurs. 40(2), 88–96 (2019). https://doi.org/10.1080/01612840.2018.1524532

Article  PubMed  Google Scholar 

Fernandes, S., Fond, G., Zendjidjian, X.Y., Baumstarck, K., Lançon, C., Berna, F., Schurhoff, F., Aouizerate, B., Henry, C., Etain, B., Samalin, L., Leboyer, M., Llorca, P.M., Coldefy, M., Auquier, P., Boyer, L.: Measuring the patient experience of mental health care: A systematic and critical review of patient-Reported experience measures. Patient Preference Adherence. 14, 2147–2161 (2020). https://doi.org/10.2147/ppa.S255264

Article  PubMed  PubMed Central  Google Scholar 

Gelkopf, M., Mazor, Y., Roe, D.: A systematic review of patient-reported outcome measurement (PROM) and provider assessment in mental health: goals, implementation, setting, measurement characteristics and barriers. Int. J. Qual. Health Care. 34(Suppl 1), ii13–ii27 (2021). https://doi.org/10.1093/intqhc/mzz133

Article  PubMed  Google Scholar 

Goetz, C., Coste, J., Lemetayer, F., Rat, A.C., Montel, S., Recchia, S., Debouverie, M., Pouchot, J., Spitz, E., Guillemin, F.: Item reduction based on rigorous methodological guidelines is necessary to maintain validity when shortening composite measurement scales. J. Clin. Epidemiol. 66(7), 710–718 (2013). https://doi.org/10.1016/j.jclinepi.2012.12.015

Article  PubMed  Google Scholar 

Gutknecht, M., Danner, M., Schaarschmidt, M.-L., Gross, C., Augustin, M.: Assessing the importance of treatment goals in patients with psoriasis: Analytic hierarchy process vs. Likert scales. Patient - Patient-Centered Outcomes Res. 11, 425–437 (2018)

Article  Google Scholar 

Haugum, M., et al. (2017). "Patient experiences questionnaire for interdisciplinary treatment for substance dependence (PEQ-ITSD): reliability and validity following a national survey in Norway." BMC Psychiatry 17(1): 73.Patient experiences are an important aspect of health care quality, but there is a lack of validated instruments for their measurement in the substance dependence literature. A new questionnaire to measure inpatients’ experiences of interdisciplinary treatment for substance dependence has been developed in Norway. The aim of this study was to psychometrically test the new questionnaire, using data from a national survey in 2013. https://doi.org/10.1186/s12888-017-1242-1

Iversen, H.H., Haugum, M., Bjertnaes, O.: Reliability and validity of the psychiatric inpatient patient experience Questionnaire – Continuous electronic measurement (PIPEQ-CEM). BMC Health Serv. Res. 22(1), 897 (2022). https://doi.org/10.1186/s12913-022-08307-5

Article  PubMed  PubMed Central  Google Scholar 

Iversen, H.H., Haugum, M., Ellingsen-Dalskau, L.H., Bjertnaes, O.: Reliability and validity of the patient experiences questionnaire for interdisciplinary treatment for substance Dependence – Continuous electronic measurement (PEQ-ITSD – CEM). BMC Health Serv. Res. 24(1), 26 (2024). https://doi.org/10.1186/s12913-023-10506-7

Article  PubMed  PubMed Central  Google Scholar 

Jelin, E., Wisløff, T., Moe, M.C., Heiberg, T.: Development and testing of a patient-derived questionnaire for treatment of neovascular age-related macular degeneration: Dimensions of importance in treatment of neovascular age-related macular degeneration. Acta Ophthalmol. 96(8), 804–811 (2018). https://doi.org/10.1111/aos.13847

Article  PubMed  CAS  Google Scholar 

Kilbourne, A.M., Beck, K., Spaeth-Rublee, B., Ramanuj, P., O’Brien, R.W., Tomoyasu, N., Pincus, H.A.: Measuring and improving the quality of mental health care: A global perspective. World Psychiatry. 17(1), 30–38 (2018). https://doi.org/10.1002/wps.20482

Article  PubMed  PubMed Central  Google Scholar 

Kjøllesdal, J.I.: HH. Pasienters erfaringer med døgnopphold innen psykisk helsevern. Resultater etter en landsdekkende undersøkelse i 2014. Rapport fra Kunnskapssenteret nr. 9 – 2014. (2014)

Leuteritz, K., Richter, D., Mehnert-Theuerkauf, A., Stolzenburg, J.-U., Hinz, A.: Quality of life in urologic cancer patients: Importance of and satisfaction with specific quality of life domains. Qual. Life Res. 31(3), 759–767 (2022). https://doi.org/10.1007/s11136-021-02954-7

Article  PubMed  Google Scholar 

Mecoli, C.A., Park, J.K., Alexanderson, H., Regardt, M., Needham, M., de Groot, I., Sarver, C., Lundberg, I.E., Shea, B., de Visser, M., Song, Y.W., Bingham, C.O. 3rd, Christopher-Stine, L.: Perceptions of Patients, Caregivers, and healthcare providers of idiopathic inflammatory myopathies: An international OMERACT study. J. Rheumatol. 46(1), 106–111 (2019). https://doi.org/10.3899/jrheum.180353

Article  PubMed  Google Scholar 

Migchels, C., Zerrouk, A., Crunelle, C.L., Matthys, F., Gremeaux, L., Fernandez, K., Antoine, J., van den Brink, W., Vanderplasschen, W.: Patient reported outcome and experience measures (PROMs and PREMs) in substance use disorder treatment services: A scoping review. Drug Alcohol Depend. 253, 111017 (2023). https://doi.org/10.1016/j.drugalcdep.2023.111017

Article  PubMed  Google Scholar 

Miglietta, E., Belessiotis-Richards, C., Ruggeri, M., Priebe, S.: Scales for assessing patient satisfaction with mental health care: A systematic review. J. Psychiatr Res. 100, 33–46 (2018). https://doi.org/10.1016/j.jpsychires.2018.02.014

Article  PubMed  Google Scholar 

Moore, P., Jackson, C., Mutch, K., Methley, A., Pollard, C., Hamid, S., Jacob, A.: Patient-reported outcome measure for neuromyelitis optica: Pretesting of preliminary instrument and protocol for further development in accordance with international guidelines. BMJ Open. 6(9), e011142 (2016). https://doi.org/10.1136/bmjopen-2016-011142

Article  PubMed  PubMed Central  CAS  Google Scholar 

Newman, D., O’Reilly, P., Lee, S.H., Kennedy, C.: Mental health service users’ experiences of mental health care: An integrative literature review. J. Psychiatr. Ment. Health Nurs. 22(3), 171–182 (2015). https://doi.org/10.1111/jpm.12202

Article  PubMed  CAS  Google Scholar 

Roe, D., Slade, M., Jones, N.: The utility of patient-reported outcome measures in mental health. World Psychiatry. 21(1), 56–57 (2022). https://doi.org/10.1002/wps.20924

Article  PubMed  PubMed Central  Google Scholar 

Rolstad, S., Adler, J., Rydén, A.: Response burden and questionnaire length: Is shorter better? A review and Meta-analysis. Value Health. 14(8), 1101–1108 (2011). https://doi.org/10.1016/j.jval.2011.06.003

Article  PubMed  Google Scholar 

Ryan, M., Scott, D., Reeves, C., Bate, A., Van Teijlingen, E., Russell, E., Napper, M., Robb, C.: Eliciting public preferences for healthcare: A systematic review of techniques. Health Technol. Assess. (Winchester, Eng). 5, 1–186 (2001). https://doi.org/10.3310/hta5050

Article  CAS  Google Scholar 

Shunmuga Sundaram, C., Campbell, R., Ju, A., King, M.T., Rutherford, C.: Patient and healthcare provider perceptions on using patient-reported experience measures (PREMs) in routine clinical care: A systematic review of qualitative studies. J. Patient-Reported Outcomes. 6(1), 122 (2022). https://doi.org/10.1186/s41687-022-00524-0

Article  Google Scholar 

Sjetne, I.S., Bjertnaes, O.A., Olsen, R.V., Iversen, H.H., Bukholm, G.: The generic short patient experiences questionnaire (GS-PEQ): Identification of core items from a survey in Norway. BMC Health Serv. Res. 11, 88 (2011). https://doi.org/10.1186/1472-6963-11-88

Article  PubMed  PubMed Central  Google Scholar 

Staniszewska, S., Mockford, C., Chadburn, G., Fenton, S.J., Bhui, K., Larkin, M., Newton, E., Crepaz-Keay, D., Griffiths, F., Weich, S.: Experiences of in-patient mental health services: Systematic review. Br. J. Psychiatry. 214(6), 329–338 (2019). https://doi.org/10.1192/bjp.2019.22

Article  PubMed  Google Scholar 

Turner, N., Dinh, J.M., Durham, J., Schroder, L.K., Ziegenfuss, J.Y., Switzer, J.A.: Development of a questionnaire to assess patient priorities in hip fracture care. Geriatr. Orthop. Surg. Rehabil. 11, 2151459320946009 (2020). https://doi.org/10.1177/2151459320946009

Article  PubMed  PubMed Central  Google Scholar 

Valentine, N., Darby, C., Bonsel, G.J.: Which aspects of non-clinical quality of care are most important? Results from who’s general population surveys of health systems responsiveness in 41 countries. Soc. Sci. Med. 66(9), 1939–1950 (2008). https://doi.org/10.1016/j.socscimed.2007.12.002

Article  PubMed  Google Scholar 

Wangensteen, T., Hystad, J.: Trust and collaboration between patients and staff in SUD treatment: A qualitative study of patients’ reflections on inpatient SUD treatment four years after discharge. Nordisk Alkohol Nark. 39(4), 418–436 (2022). https://doi.org/10.1177/14550725221082366

Article  PubMed  PubMed Central 

Comments (0)

No login
gif