Abayomi-Paul, T. 2022. What Black disabled women want. YES! Magazine. https://www.yesmagazine.org/social-justice/2022/02/24/what-black-disabled-women-want. Accessed 4 Feb 2022.
Albrecht, G.L., and P.J. Devlieger. 1999. The disability paradox: High quality of life against all odds. Social Science & Medicine 48(8): 977–988.
Bailey, M., and I.A. Mobley. 2018. Work in the intersections: A Black feminist disability framework. Gender & Society 33(1): 19–40.
Betjemann, J.P., A.C. Thompson, C. Santos-Sánchez, P.A. Garcia, and S.L. Ivey. 2013. Distinguishing language and race disparities in epilepsy surgery. Epilepsy & Behavior 28(3): 444–449.
Bloom, S.W. 1988. Structure and ideology in medical education: An analysis of resistance to change. Journal of Health and Social Behavior 29(4): 294–306.
Article CAS PubMed Google Scholar
Boehm, N.L. 2022. Bioethics and epilepsy. The Defeating Epilepsy Foundation. https://www.defeatingepilepsy.org/living-with-epilepsy-series/bioethics-and-epilepsy/. Accessed 11 Mar 2024.
Boster, D.H. 2009. An “epeleptick” bondswoman: Fits, slavery, and power in the antebellum South. Bulletin of the History of Medicine 83(2): 271–301.
Brewer S.J. 1976. Holy warriors: The abolitionists and american slavery. New York: Hill and Wang.
Brown, J. 2018 [1855]. Slave life in Georgia: A narrative of the life, sufferings, and escape of John Brown, a fugitive slave. London: Forgotten Books.
Burneo, J.G. 2009. Race, ethnicity, and epilepsy research. Epilepsy & Behavior 14(3): 436–437.
Doulos, A. 2022. The neurologist said, “All girls your age have seizures. You’re fine, go live your life”: EDS, epilepsy warrior shares struggles of navigating chronic illness as a Black woman. Love What Matters. https://www.lovewhatmatters.com/eds-epilepsy-black-woman-chronic-illness-discrimination/. Accessed 16 Feb 2023.
Düwell, M. 2014. On the border of life and death: Human dignity and bioethics. In Human dignity: The interdisciplinary perspectives, edited by M. Düwell, J. Braarvig, R. Brownsword, and D. Mieth, 527–544. Cambridge: Cambridge University Press.
Erevelles, N. 2011. Disability and difference in global contexts: Enabling a transformative body politic. New York: Palgrave Macmillan.
Fett, S.M. 2002. Working cures: Healing, health, and power on southern slave plantations. Ithaca and New York: The University of North Carolina Press.
Foucault, M. 1980a. Power/knowledge: Selected interviews and other writings, 1972–1977. In C. Gordon, ed. Translated by L. Marshall, J. Mepham, and K. Soper. New York: Pantheon Books.
Foucault, M. 1980b. The history of sexuality. Volume I: An introduction. New York: Vintage Books.
Friedlander, W.J. 2001. The history of modern epilepsy: The beginning, 1865–1914. London: Bloomsbury Publishing.
Garcia, J.L.A. 2007. Revisiting African American perspectives on biomedical ethics: Distinctiveness and other questions. In African American bioethics: Culture, race, and identity, edited by E.D. Pellegrino and L.J. Prograis Jr., 1–14. Washington, DC: Georgetown University Press.
Garland-Thomson, R. 1997. Extraordinary bodies: Figuring physical disability in American culture and literature. New York: Columbia University Press.
____ 2009. Staring: How we look. New York: Oxford University Press.
____ 2017. Disability bioethics: From theory to practice. Kennedy Institute of Ethics Journal 27(2): 323–339.
Gill, M., and N. Erevelles. 2017. The absent presence of Elsie Lacks: Hauntings at the intersection of race, class, gender, and disability. African American Review 50(2): 123–137.
Graumann, S. 2014. Human dignity and people with disabilities. In Human dignity: The interdisciplinary perspectives, edited by M. Düwell, J. Braarvig, R. Brownsword, and D. Mieth, 483–497. Cambridge: Cambridge University Press.
Hartman, S. 2008. Venus in two acts. Small Axe: A Caribbean Journal of Criticism 12(2): 1–14.
Hoberman, J.M. 2012. Black and blue: The origins and consequences of medical racism. Berkeley: University of California Press.
Hughes, B., and K. Paterson. 1997. The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society 12(3): 325–340.
Hylton, A. 2024. Madness: Race and insanity in America. London: Footnote Press.
Jablonski, N.G. 2021. Skin color and race. American Journal of Physical Anthropology 175(2): 437–447.
Johnson, W. 1999. Soul by soul: Life inside the antebellum slave market. London: Harvard University Press.
Kaculini, C.M., A.J. Tate-Looney, and A. Seifi. 2021. The history of epilepsy: From ancient mystery to modern misconception. Cureus 13(3): e13953.
PubMed PubMed Central Google Scholar
Larkin, L. 2020. Reading in the postgenomic age: On contemporary literature and the good bionarrative citizen. Hastings Center Report 50(S1): S37–S43.
Leder, D. 1992. The body in medical thought and practice. Dordrecht: Springer.
Lopez, K., and Y. Xu. 2021. Epilepsy at the intersection of disability, gender, and culture: A duoethnography. Epilepsy & Behavior 122: 108121.
Macgregor, F.C. 1974. Transformation and identity: The face and plastic surgery. New York: Quadrangle/The New York Times Book Co.
Malcom, D.R. 2018. Teaching and assessing clinical ethics through group reading experience and student-led discussion. Currents in Pharmacy Teaching and Learning 10(5): 602–610.
Maybee, J. 2020. Making and unmaking disability. New York and London: Rowman & Littlefield.
McCauley, E.J. 2017. The cumulative probability of arrest by age 28 years in the United States by disability status, race/ethnicity, and gender. American Journal of Public Health 107(12): 1977–1981.
Article PubMed PubMed Central Google Scholar
McCullough, D.C. 2019. Metamorphosis and resurrection of Henrietta Lacks. Cultural Studies – Critical Methodologies 20(3): 251–260.
Mitchell, D.T., and S.L. Snyder. 2002. Narrative prosthesis: Disability and the dependencies of discourse. Ann Arbor: University of Michigan Press.
Nisbet, M.C., and D. Fahy. 2013. Bioethics in popular science: Evaluating the media impact of The immortal life of Henrietta Lacks on the biobank debate. BMC Medical Ethics 14(1): 10.
Article PubMed PubMed Central Google Scholar
Oliver, M. 1996. Defining impairment and disability: Issues at stake. Leeds: Disability Press
Parens, E. 2017. Choosing flourishing: Toward a more “binocular” way of thinking about disability. Kennedy Institute of Ethics Journal 27(2): 257–277
Pickens, T.A. 2019. Black madness: Mad Blackness. Durham and London: Duke University Press.
Pitts, A.J. 2022. Disability bioethics and race. In The disability bioethics reader, edited by J.M. Reynolds, 229–244. New York and London: Routledge.
Rembis, M. 2022. A short history of modern medicine and disability. In The disability bioethics reader, edited by J.M. Reynolds, 15–30. New York and London: Routledge.
Reverby, S.M. 2009. Examining Tuskegee: The infamous syphilis study and its legacy. Chapel Hill: University of North Carolina Press.
Reynolds, J.M. 2022. Theories of disability. In The disability bioethics reader, edited by J.M. Reynolds, 1–14. New York and London: Routledge.
Rhodes, P., A. Nocon, N. Small, and J. Wright. 2008. Disability and identity: The challenge of epilepsy. Disability & Society 23(4): 385–395.
Rogers Albert, O.V. 1890. The House of Bondage: Charlotte Brooks and Other Slaves, Original and Life Like, as They Appeared in Their Old Plantation and City Slave Life. New York: Hunt & Eaton.
Savitt, Todd L. 1978. Medicine and slavery: The diseases and health care of Blacks in antebellum Virginia. Urbana: University of Illinois Press.
Schneider, J.W. 1988. Disability as moral experience: Epilepsy and self in routine relationships. Journal of Social Issues 44(1): 63–78.
Schulman, A. 2012. What is the body worth? The New Atlantis. https://www.thenewatlantis.com/publications/what-is-the-body-worth.
Scully, J.L. 2008. Disability bioethics: Moral bodies, moral difference. Lanham, MD: Rowman & Littlefield.
Shakespeare, T. 2006. Disability rights and wrongs. London: Routledge.
Shakespeare, T. 2014. Disability rights and wrongs revisited. New York: Routledge.
Skloot, R. 2010. The immortal life of Henrietta Lacks. New York: Picador.
Stauffer, J. 2002. The Black hearts of men: Radical abolitionists and the transformation of race. Cambridge, MA: Harvard University Press.
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