Haukelien, H., & Wyller, T. (2017). Når alle gode krefter drar i feil retning [When all good forces pull in the wrong direction]. In H. Haukelien & T. Wyller (Eds.), Ny Helsepolitikk: Det finnes løsninger [New Health Policy: There are solutions] (pp. 11–27). Dreyers forlag.
Helse- og omsorgsdepartementet. (2018). Meld. St. 15 (2017–2018) Leve hele livet — En kvalitetsreform for eldre. Oslo.
Helse- og omsorgsdepartementet (Ministry of Health and Care Services). (2023). Meld. St. 24 (2022–2023) Fellesskap og meistring — Bu trygt heime. Oslo.
Hagen, T. P., Gautun, H., Havik, A. K., McArthur, D. P., Moger, T. A., Kjøs, B. Ø., Sogstad, M., Tingvold, L., Tjerbo, T., Romøren, T. I., & Veenstra, M. (2015). Resultatevaluering av Omsorgsplan 2015: Faglig sluttrapport [Result evaluation of Care Plan 2015: Final professional report].
European Commission Directorate-General for Employment Social Affairs and Inclusion. (2021). Long-Term Care Report. Trends, challenges and opportunities in an ageing society. Luxembourg.
Iversen, H. H., Haugum, M., & Bjertnaes, O. (2022). Reliability and validity of the Psychiatric Inpatient Patient Experience Questionnaire - Continuous Electronic Measurement (PIPEQ-CEM). BMC Health Services Research, 22(1), 897.
Article PubMed PubMed Central Google Scholar
Pettersen, K. I., Veenstra, M., Guldvog, B., & Kolstad, A. (2004). The Patient Experiences Questionnaire: Development, validity and reliability. International Journal for Quality in Health Care, 16, 453–463.
Sjetne, I. S., Iversen, H. H., & Kjøllesdal, J. G. (2015). A questionnaire to measure women’s experiences with pregnancy, birth and postnatal care: Instrument development and assessment following a national survey in Norway. BMC Pregnancy and Childbirth, 15, 182.
Article PubMed PubMed Central Google Scholar
Helse- og omsorgsdepartementet (Ministry of Health and Care Services). (2024). Meld. St. 9 (2023 –2024) Melding til Stortinget Nasjonal helse- og samhandlingsplan 2024–2027 Vår felles helsetjeneste.
World Health Organization. (2024). WHOQOL-BREF. Retrieved 06.09.2024, 2024, from https://www.who.int/tools/whoqol/whoqol-bref
Netten, A., Burge, P., Malley, J., Potoglou, D., Towers, A. M., Brazier, J., Flynn, T., Forder, J., & Wall, B. (2012). Outcomes of social care for adults: developing a preference-weighted measure (No. 1366–5278).
Personal Social Services Research Unit (PSSRU). ASCOT adult social care outcomes toolkit. Retrieved 25.10.2023, 2023, from https://www.pssru.ac.uk/ascot/
Siette, J., Knaggs, G. T., Zurynski, Y., Ratcliffe, J., Dodds, L., & Westbrook, J. (2021). Systematic review of 29 self-report instruments for assessing quality of life in older adults receiving aged care services. British Medical Journal Open, 11(11), Article e050892.
Towers, A. M., Rand, S., Allan, S., Webster, L. A., Palmer, S., Carroll, R., Gordon, A. L., Akdur, G., Smith, N., Burton, J., Killett, A., Hanratty, B., Meyer, J., Spilsbury, K., & Goodman, C. (2025). Assessing the feasibility of measuring residents’ quality of life in English care homes and the construct validity and internal consistency of measures completed by staff proxy: A cross-sectional study. British Medical Journal Open, 15(1), Article e090684.
Trukeschitz, B., Hajji, A., Litschauer, J., Malley, J., Schoch, A., Rand, S., Linnosmaa, I., & Forder, J. (2021). Translation, cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for informal carers (German ASCOT-Carer). Quality of Life Research : An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 30(3), 905–920.
Linnosmaa, I., Nguyen, L., & Jokimäki, H. (2020). The EXCELC project in Finland The main descriptive findings from surveys using the Adult Social Care Outcomes Toolkit (ASCOT) Helsinki.
van Leeuwen, K. M., Bosmans, J. E., Jansen, A. P., Rand, S. E., Towers, A. M., Smith, N., Razik, K., Trukeschitz, B., van Tulder, M. W., van der Horst, H. E., & Ostelo, R. W. (2015). Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT). Health and Quality of Life Outcomes, 13, 56.
Article PubMed PubMed Central Google Scholar
Rostgaard, T., Andersen, M. H., Clement, S. L., & Rasmussen, S. (2013). Omsorgsbetinget livskvalitet og hjemmehjælp - En ASCOT undersøgelse blandt hjemmehjælpsmodtagere Analysenotat. Aalborg.
Nakamura-Thomas, H., Morikawa, M., Moriyama, Y., Shiroiwa, T., Kyougoku, M., Razik, K., & Malley, J. (2019). Japanese translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) in Japanese social service users. Health and Quality of Life Outcomes, 17(1), 59.
Article PubMed PubMed Central Google Scholar
Yu, S., Sze, J. C. D., Cheung, A. W. L., Wang, K., Welch, E., Smith, N., Xu, R. H., & Wong, E. L. Y. (2025). Translation, cultural adaptation, and content validation of the Hong Kong Chinese version of Self-completion Adult Social Care Outcomes Toolkit (ASCOT-SCT4) for care service users. Health and Quality of Life Outcomes, 23(1), 57.
Article PubMed PubMed Central Google Scholar
University of Kent. (2025). Adult Social Care Outcomes Toolkit. Translations. Retrieved 13.10.2025, 2025, from https://research.kent.ac.uk/ascot/translations/
Hajji, A., Trukeschitz, B., Malley, J., Batchelder, L., Saloniki, E., Linnosmaa, I., & Lu, H. (2020). Population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users for Austria: Findings from a best-worst experiment. Social Science & Medicine, 250, Article 112792.
Nguyen, L., Jokimäki, H., Linnosmaa, I., Saloniki, E. C., Batchelder, L., Malley, J., Lu, H., Burge, P., Trukeschitz, B., & Forder, J. (2021). Do you prefer safety to social participation? Finnish population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users. MDM Policy & Practice, 6(2), Article 23814683211027902.
Shiroiwa, T., Moriyama, Y., Nakamura-Thomas, H., Morikawa, M., Fukuda, T., Batchelder, L., Saloniki, E. C., & Malley, J. (2020). Development of Japanese utility weights for the Adult Social Care Outcomes Toolkit (ASCOT) SCT4. Quality of Life Research, 29(1), 253–263.
Towers, A. M., Rand, S., Collins, G., Smith, N., Palmer, S., & Cassell, J. (2023). Measuring quality of life in care homes when self-report is challenging: The construct validity, structural characteristics and internal consistency of the mixed-methods Adult Social Care Outcomes Toolkit. Age and Ageing. https://doi.org/10.1093/ageing/afad168
Article PubMed PubMed Central Google Scholar
Towers, A. M., Smith, N., Allan, S., Vadean, F., Collins, G., Rand, S., Bostock, J., Ramsbottom, H., Forder, J., Lanza, S., & Cassell, J. (2021). Care home residents' quality of life and its association with CQC ratings and workforce issues: the MiCareHQ mixed-methods study. Health Services and Delivery Research [Health Serv Deliv Res], 9(19).
Malley, J., Rand, S., Netten, A., Towers, A.-M., & Forder, J. (2019). Exploring the feasibilty and validity of a pragmatic approach to estimating the impact of long-term care. The “expected” ASCOT method. Journal of Long-Term Care. https://doi.org/10.31389/jltc.11
Towers, A. M., Smith, N., Palmer, S., Welch, E., & Netten, A. (2016). The acceptability and feasibility of using the Adult Social Care Outcomes Toolkit (ASCOT) to inform practice in care homes. BMC Health Services Research, 16(1), Article 523.
Article PubMed PubMed Central Google Scholar
Kaambwa, B., Gill, L., McCaffrey, N., Lancsar, E., Cameron, I. D., Crotty, M., Gray, L., & Ratcliffe, J. (2015). An empirical comparison of the OPQoL-Brief, EQ-5D-3 L and ASCOT in a community dwelling population of older people. Health and Quality of Life Outcomes, 13, Article 164.
Article PubMed PubMed Central Google Scholar
van Leeuwen, K. M., Jansen, A. P., Muntinga, M. E., Bosmans, J. E., Westerman, M. J., van Tulder, M. W., & van der Horst, H. E. (2015). Exploration of the content validity and feasibility of the EQ-5D-3L, ICECAP-O and ASCOT in older adults. BMC Health Services Research, 15, Article 201.
Article PubMed PubMed Central Google Scholar
Zhao, P., Qi, W., Li, P.-J., & Li, P. (2024). Reconceptualizing the link between validity and translation in qualitative research: Extending the conversation beyond equivalence. International Journal of Qualitative Methods, 23, Article 16094069241260134.
Helse- og omsorgsdepartementet [Ministry of health and care services]. (2011). Lov om kommunale helse- og omsorgstjenester m.m. (helse- og omsorgstjenesteloven) [Act relating to municipal health- and care services].
Norwegian Directorate of eHealth. (2023). Helsenorge.no, Help services in the municipalities. Retrieved 11.10.2023, 2023, from https://www.helsenorge.no/en/help-services-in-the-municipalities/
Rostad, H. M., Skinner, M. S., Hellesø, R., & Sogstad, M. K. R. (2020). Towards specialised and differentiated long-term care services: A cross-sectional study. BMC Health Services Research, 20(1), Article 793.
Article PubMed PubMed Central Google Scholar
Burrell, L. V., Rostad, H. M., Wentzel-Larsen, T., Skinner, M. S., & Sogstad, M. K. R. (2023). The influence of individual and municipality characteristics on allocation of long-term care services: A register-based cross-sectional study. BMC Health Services Research, 23(1), Article 801.
Article PubMed PubMed Central Google Scholar
Statistisk sentralbyrå [Statistics Norway]. (2025). Tabell 06969: Brukarar av omsorgstenester per 31.12., etter tenestetype, statistikkvariabel, år og alder [Users of care services per 31.12., by kind of service, contents, year and age].
ASCOT team. (2025). Guidance for translations of ASCOT v5.3.
Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., Verjee-Lorenz, A., & Erikson, P. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation. Value in Health, 8(2), 94–104.
Trukeschitz, B., Litschauer, J., Hajji, A., Kieninger, J., Schoch, A., Malley, J., Rand, S., Linnosmaa, I., & Forder, J. (2020). Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (German ASCOT). Health and Quality of Life Outcomes, 18(1), 326.
Article PubMed PubMed Central Google Scholar
Cruchinho, P., López-Franco, M. D., Capelas, M. L., Almeida, S., Bennett, P. M., da Miran Silva, M., Teixeira, G., Nunes, E., Lucas, P., & Gaspar, F. (2024). Translation, cross-cultural adaptation, and validation of measurement instruments: A practical guideline for novice researchers. Journal of Multidisciplinary Healthcare, 17, 2701–2728.
Article PubMed PubMed Central Google Scholar
Willis, G. B. (1999). Cognitive interviewing. A "how to" guide: American Statistical Association.
Dillman, D. A. (2000). Mail and Internet surveys : The tailored design method (2.ed.). Wiley.
Ryan, K., Gannon-Slater, N., & Culbertson, M. J. (2012). Improving survey methods with cognitive interviews in small- and medium-scale evaluations. American Journal of Evaluation, 33(3), 414–430.
Weinfurt, K. P. (2025). The argument-based approach to validity applied to clinical outcome assessments: Some history and notable features. Value in Health : The Journal of the International Society for Pharmacoeconomics and Outcomes Research, 28(7), 997–1000.
Veenstra, M., Burrell, L. V., Strømseng Sjetne, I., Towers, A. M., & Raknes Sogstad, M. K. (2026). Validity and reliability of the Norwegian Adult Social Care Outcomes Toolkit (ASCOT CH4 and INT4) in three long-term care settings. Journal of Patient-Reported Outcomes. https://doi.org/10.1186/s41687-026-00997-3
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