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Characterizing heterogeneity in health-related quality of life trajectories in coronary artery disease: a longitudinal latent Markov analysis
Characterizing heterogeneity in health-related quality of life trajectories in coronary artery disease: a longitudinal latent Markov analysis
This study used latent Markov modelling (LMM) to identify distinct HRQOL states and predictors of transitions in a large C...
Psychometric validation of a cognition and social participation bolt-on for the EQ-5D-5L in SARS-CoV-2 infected German healthcare workers
Psychometric validation of a cognition and social participation bolt-on for the EQ-5D-5L in SARS-CoV-2 infected German healthcare workers
COVID-19 can result in long-term impairments, including cognitive difficulties and restrictions in social participation, w...
From QI-disability to QID-12: creating a brief proxy-report measure of quality of life for children with intellectual disability
From QI-disability to QID-12: creating a brief proxy-report measure of quality of life for children with intellectual disability
Quality of Life Disability (QI-Disability) is a 32-item parent-report measure assessing quality of life (QOL) in children ...
Using confirmatory factor analysis to identify symptom clusters in individuals with acquired disabilities
Using confirmatory factor analysis to identify symptom clusters in individuals with acquired disabilities
Acquired disabilities, such as spinal cord injury, traumatic brain injury, limb loss (or other major limb injury/illness),...
Factors influencing the caregiver burden on primary family caregivers of stroke survivors: a scoping review
Factors influencing the caregiver burden on primary family caregivers of stroke survivors: a scoping review
Stroke is a leading cerebrovascular disease characterized by high incidence and significant disability rates. Following th...
Impact of inactivated influenza vaccination on health-related quality of life for young children using Japanese experimental EuroQol toddler and infant populations (EQ-TIPS) v2.0
Impact of inactivated influenza vaccination on health-related quality of life for young children using Japanese experimental EuroQol toddler and infant populations (EQ-TIPS) v2.0
Evidence regarding health-related quality of life (HRQL) measurement for conditions with daily fluctuations is scarce. Thi...
Internal validation methods to detect patient characteristics associated with differential item functioning in patient-reported outcome measures
Internal validation methods to detect patient characteristics associated with differential item functioning in patient-reported outcome measures
Differential item functioning (DIF) detection methods are one tool to assess validity of patient-reported outcome measures...
Population norms for the EQ-5D-3L and EQ-5D-5L in Peninsular Malaysia
Population norms for the EQ-5D-3L and EQ-5D-5L in Peninsular Malaysia
Population norms for preference-based health-related quality of life (HRQoL) instruments provide essential reference data ...
Norwegian translation and adaptation of the INT4 version of the Adult Social Care Outcomes Toolkit (ASCOT)
Norwegian translation and adaptation of the INT4 version of the Adult Social Care Outcomes Toolkit (ASCOT)
In Norway, no standardized instrument has been available to measure outcomes of long-term care (LTC) from the perspective ...
Quality of life, care needs and priorities in atrial fibrillation: the impact of number and patterns of comorbidities
Quality of life, care needs and priorities in atrial fibrillation: the impact of number and patterns of comorbidities
Atrial fibrillation (AF) often coexists with multiple chronic conditions, worsening health-related quality of life (HRQoL)...
Assessing the impact of neoadjuvant chemotherapy and chemoradiotherapy on quality of life during treatment in esophageal cancer: a systematic review and meta-analysis
Assessing the impact of neoadjuvant chemotherapy and chemoradiotherapy on quality of life during treatment in esophageal cancer: a systematic review and meta-analysis
This study aimed to assess how neoadjuvant chemotherapy (nCT) and neoadjuvant chemoradiotherapy (nCRT) affect the quality ...
Carers’ interpretation of the recall period and perspective-taking when completing the EQ health and wellbeing instrument (EQ-HWB)-9 as proxies for people with dementia: a think-aloud study
Carers’ interpretation of the recall period and perspective-taking when completing the EQ health and wellbeing instrument (EQ-HWB)-9 as proxies for people with dementia: a think-aloud study
Patient-reported outcome measures are often administered with specific recall periods to standardise reporting. However, r...
Total treatment interval and quality of life of women living with breast cancer in Ethiopia: the mediating role of financial toxicity
Total treatment interval and quality of life of women living with breast cancer in Ethiopia: the mediating role of financial toxicity
Delays in breast cancer care are common in low-resource settings and may adversely affect patients’ quality of life ...
Lung function trajectory: a partial mediator of the relationships between depressive symptoms and health-related quality of life in the aging population
Lung function trajectory: a partial mediator of the relationships between depressive symptoms and health-related quality of life in the aging population
Depressive symptoms are prevalent, heterogeneous conditions involving physical and psychological manifestations, and are a...
Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review
Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review
Patient-reported outcome measures (PROMs) are increasingly valued for enhancing patient-centered care and clinical decisio...
“I think her life got so much better”: parents’ perceptions of children’s quality of life following treatment of tracheomalacia with aortopexy
“I think her life got so much better”: parents’ perceptions of children’s quality of life following treatment of tracheomalacia with aortopexy
Aortopexy is a procedure to reduce pressure on the trachea in children with severe tracheomalacia. Health-related quality ...
Long‑term physical and mental Health-Related Quality of Life in Italian patients post COVID-19 hospitalisation
Long‑term physical and mental Health-Related Quality of Life in Italian patients post COVID-19 hospitalisation
Prior evidence suggests that patients’ Health Related Quality of Life (HRQoL) worsens after COVID-19. This study aim...
Bayesian item response theory to estimate power in clinical trials with patient-reported outcomes as endpoints
Bayesian item response theory to estimate power in clinical trials with patient-reported outcomes as endpoints
Patient-Reported Outcomes (PROs) are widely used in clinical trials, epidemiological research, quality of life (QOL) studi...
Impact of surgery versus follow-up on psychological distress in patients with indeterminate pulmonary nodules: A prospective observational study
Impact of surgery versus follow-up on psychological distress in patients with indeterminate pulmonary nodules: A prospective observational study
To investigate whether surgery is more effective than follow-up in reducing psychological distress for patients with obser...
Patient-reported outcome measures (PROMs) used among liver transplant recipients: a systematic review and methodological quality appraisal
Patient-reported outcome measures (PROMs) used among liver transplant recipients: a systematic review and methodological quality appraisal
To identify instruments used to measure patient-reported outcomes after LT, and critically evaluate their measurement prop...
Wellbeing and quality of life among parents of individuals with Fontan physiology
Wellbeing and quality of life among parents of individuals with Fontan physiology
To examine global and health-related quality of life (QOL) among parents of individuals with Fontan physiology and determi...
Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe
Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe
To systematically review qualitative studies on outcomes, needs, experiences, preferences, concerns and health-related qua...
The Multimorbidity Questionnaire (MMQ1): English translation and validation of a Danish patient reported outcome measure for quality of life in people with multiple long-term conditions in a cross-sectional survey
The Multimorbidity Questionnaire (MMQ1): English translation and validation of a Danish patient reported outcome measure for quality of life in people with multiple long-term conditions in a cross-sectional survey
MMQ1 is a Danish-language patient-reported outcome measure (PROM) for quality of life (QOL) in people with multiple long-t...
Validation of the FROM-16 in family members of patients receiving advanced therapy medicinal product (ATMP)
Validation of the FROM-16 in family members of patients receiving advanced therapy medicinal product (ATMP)
Outcome-based pricing models which consider domains of value not previously considered in healthcare, such as societal out...
Longitudinal relationships across sleep, physical activity, and mental wellbeing in early-to-mid-adolescence: a developmental cascades investigation
Longitudinal relationships across sleep, physical activity, and mental wellbeing in early-to-mid-adolescence: a developmental cascades investigation
Sleep (SL), physical activity (PA), and wellbeing (WB) are three factors linked to positive development in adolescence. De...
The role of different health information sources in moderating the impact of health literacy on health-related quality of life: evidence from a population-based study in Korea
The role of different health information sources in moderating the impact of health literacy on health-related quality of life: evidence from a population-based study in Korea
Health literacy is a key aspect of healthy living and is widely recognized as a crucial determinant of health outcomes and...
Impact of signs and symptoms of dry eye disease on health-related quality of life: a cross-sectional population study among older adults
Impact of signs and symptoms of dry eye disease on health-related quality of life: a cross-sectional population study among older adults
To assess the relationship between quality of life (QoL) and ocular surface health within a Finnish population-based cohor...
Relations between trajectories of weight loss and changes in psychological health over a period of 2 years following bariatric metabolic surgery
Relations between trajectories of weight loss and changes in psychological health over a period of 2 years following bariatric metabolic surgery
This study aimed to identify trajectories of BMI, obesity-specific health-related quality of life (HR-QoL), and depression...
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
This study aimed to translate and culturally adapt the standardized outcomes in nephrology–hemodialysis fatigue (SON...
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs),...
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