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Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review
Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review
Background:Advance care planning is important for people with advanced cancer. Family involvement in advance care planning...
‘There’s this big fear around palliative care because it’s connected to death and dying’: A qualitative exploration of the perspectives of undergraduate students on the role of the speech and language therapist in palliative care
‘There’s this big fear around palliative care because it’s connected to death and dying’: A qualitative exploration of the perspectives of undergraduate students on the role of the speech and language therapist in palliative care
Background:Speech and language therapy in palliative care is a developing discipline of clinical practice. Research litera...
Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique
Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique
Background:Missing data can introduce bias and reduce the power, precision and generalisability of study findings. Guideli...
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis
Background:Close relatives provide much of the care to people with cancer. As resilience can shield family caregivers from...
Differences in goals of care discussion outcomes among healthcare professionals: an observational cross-sectional study
Differences in goals of care discussion outcomes among healthcare professionals: an observational cross-sectional study
Background:Goals of care discussions ensure patients receive the care that they want. Recent studies have recognized the o...
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis
Background:Much palliative care provision relies on the support of volunteers. Attention is paid to the risks to professio...
Facilitating family needs and support at the end of life in hospital: A descriptive study
Facilitating family needs and support at the end of life in hospital: A descriptive study
Background:Caring for family members of dying patients is a vital component of end-of-life care, yet family members’ needs...
Palliative care needs and experiences of people in prison: A systematic review and meta-synthesis
Palliative care needs and experiences of people in prison: A systematic review and meta-synthesis
Background:Globally, the prison population is growing and ageing, as is the need for palliative care. Yet, little is known...
General practitioners’ evaluations of optimal timing to initiate advance care planning for patients with cancer, organ failure, or multimorbidity: A health records survey study
General practitioners’ evaluations of optimal timing to initiate advance care planning for patients with cancer, organ failure, or multimorbidity: A health records survey study
Background:Appropriate timing to initiate advance care planning is difficult, especially for individuals with non-malignan...
Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study
Communication strategies and persuasion as core components of shared decision-making for children with life-limiting conditions: A multiple case study
Background:Families and professionals caring for children with life-limiting conditions face difficult healthcare decision...
Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review
Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review
Background:Most people with dementia transition into nursing homes as their disease progresses. Their family caregivers of...
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis
Background:Cancer caregiving is a distressing experience and loss of a loved one can lead to intense grief and other adver...
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Background:Palliative rehabilitation involves multi-professional processes and interventions aimed at optimising patients’...
The importance of methodology to palliative care research: A new article type for Palliative Medicine
The importance of methodology to palliative care research: A new article type for Palliative Medicine
1. Leahey, E, Lee, J, Funk, R. What types of novelty are most disruptive? Leiden, The Netherlands: Seminar Centre for Scie...
Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice
Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice
Background:Assessing pain in infants, children and young people with life-limiting conditions remains a challenge due to d...
Patient perspectives on states worse than death: A qualitative study with implications for patient-centered outcomes and values elicitation
Patient perspectives on states worse than death: A qualitative study with implications for patient-centered outcomes and values elicitation
Background:Seriously ill patients rate several health outcomes as states worse than death. It is unclear what factors unde...
Is trained communication about desire to die harmful for patients receiving palliative care? A cohort study
Is trained communication about desire to die harmful for patients receiving palliative care? A cohort study
Background:Palliative patients frequently express a desire to die. Health professionals report uncertainty regarding poten...
Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis
Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis
Background:Delirium is common and distressing for patients receiving palliative care. Interventions targetting modifiable ...
Use of long term aprepitant as a treatment for refractory nausea following oesophageal stent insertion – a case report
Use of long term aprepitant as a treatment for refractory nausea following oesophageal stent insertion – a case report
Background:Aprepitant, a substance P neurokinin-1 receptor antagonist, is licenced for the prevention of acute and delayed...
“By the time she got sick it was just kind of too late”: A qualitative study on advanced care planning among bereaved lesbian, gay, and bisexual older women
“By the time she got sick it was just kind of too late”: A qualitative study on advanced care planning among bereaved lesbian, gay, and bisexual older women
Background:Lesbian, gay, and bisexual (LGB) older women have unmet communication needs around palliative and end-of-life c...
Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations
Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations
Background:Collaboration between parents and professional care providers is an essential part of pediatric palliative care...
Palliative care physicians’ motivations for models of practicing in the community: A qualitative descriptive study
Palliative care physicians’ motivations for models of practicing in the community: A qualitative descriptive study
Background:Internationally, both primary care providers and palliative care specialists are required to address palliative...
Capturing what matters: A retrospective observational study of advance care planning documentation at an academic medical center during the COVID-19 pandemic
Capturing what matters: A retrospective observational study of advance care planning documentation at an academic medical center during the COVID-19 pandemic
Background:Advance care planning allows patients to share their preferences for medical care with the aim of ensuring goal...
Which factors influence the quality of end-of-life care in interstitial lung disease? A systematic review with narrative synthesis
Which factors influence the quality of end-of-life care in interstitial lung disease? A systematic review with narrative synthesis
Background:People dying from interstitial lung disease experience considerable symptoms and commonly die in an acute healt...
Service change and innovation in community end-of-life care during the COVID-19 pandemic: Qualitative analysis of a nationwide primary care survey
Service change and innovation in community end-of-life care during the COVID-19 pandemic: Qualitative analysis of a nationwide primary care survey
Background:Primary healthcare teams (general practice and community nursing services) within the United Kingdom provided t...
Practice review: Evidence-based and effective management of fatigue in patients with advanced cancer
Practice review: Evidence-based and effective management of fatigue in patients with advanced cancer
Background:Fatigue affects most patients living with advanced cancer and is a symptom that healthcare professionals can fi...
Using advance and emergency care plans during transfer decisions: A grounded theory interview study with care home staff
Using advance and emergency care plans during transfer decisions: A grounded theory interview study with care home staff
Background:Advance care planning has been identified as one of few modifiable factors that could reduce hospital transfers...
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
Background:The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understandi...
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis
Background:There is a growing demand for community palliative care and home-based deaths worldwide. However, gaps remain i...
Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature
Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature
Background:Living with life-limiting illness significantly impacts quality of life. A growing body of evidence suggests th...
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